Living with coeliac disease: a grounded theory study
Rose, C and Howard, R. (2014.) Journal of Human Nutrition and Dietetics; 27,1:30–40.
The authors concluded that “Gluten-free living entails a substantial restriction of food choice. The losses and changes entailed impact on the personal and social identities of those living with coeliac disease, and on the behaviour of others towards them. Psychosocial interventions focussed on facilitating coping and adjustment may benefit those experiencing difficulties.” Read article here.
Child and Parental Reports of Bullying in a Consecutive Sample of Children With Food Allergy
Shemesh, E, et al (2013.) Pediatrics;131:1.
The researchers found that bullying of children with food allergies was common, often involving threats with food. Bullied food-allergic children, compared with non-bullied children, report higher anxiety and lower quality of life. When parents were aware of the bulling (in about 50% of the cases) the children had better social and emotional functioning. Read article here.
Food allergy knowledge, attitudes and beliefs: Focus groups of parents, physicians and the general public
Gupta, RS et al, 2008. BioMed Central Pediatrics, 8:36
The researchers conducted focus groups and concluded that the quality of life for children with food allergy and their families is impacted by the food allergies. Improvement is needed in both knowledge and understanding for physicians and the general public. Read article here.
Food that makes you different: the stigma experienced by adolescents with celiac disease
Olsson C, Lyon P, Hörnell A, Ivarsson A, Sydner YM. (2009.) Qualitative Health Research;19(7):976-84.
Researchers explored adolescents’ compliance with the gluten-free diet (GFD) as it related to stigma. The GFD often required discussions and special requests, so eating in public had the effect of making an invisible condition visible, and thereby creating a context for felt or enacted stigma. The results of the study show that the GFD can produce stigma experiences in adolescence, and that dietary compliance (or lack thereof) can be understood in terms of dealing with GFD concealment and disclosure. Read abstract here.
Tag, you’re different: the interrupted spaces of children at risk of anaphylaxis
Nancy E. Fenton, NE; Elliott, SJ, & Clarke, A (2013.) Children’s Geographies, 11,3:281-297.
The researchers explore the emotional context of experiences of children at anaphylactic risk, particularly within the school environment. This research attempts to go beyond the policy response by listening to the children (and their parents) in order to understand the emotionality of their risk experience. Read abstract here.
Low income, high risk: the overlapping stigmas of food allergy and poverty
Minaker, LM; Elliott, SJ; & Clarke, A. Critical Public Health, 2014.
In this study the authors sought to explore experiences and coping strategies of low-income families affected by food allergies, including the intersection of allergy-related stigma with poverty stigma. Results can be used to suggest additions to a conceptual model of disease stigma. Differing perspectives between key informants and low-income individuals have implications for strategies to improve access to education, safe food, and medication for low-income families affected by food allergies. Read abstract here.
Concealable Stigmatized Identities and Psychological Well-Being
Quinn, DM, and Earnshaw, VA (2013.) Social and Personality Psychology Compass; 7(1): 40–51.
The authors discuss how identities that are socially devalued or negatively stereotyped affect psychological well-being, They explore existing research and areas to explore in the future. Read article here.
Understanding Concealable Stigmatized Identities: The Role of Identity in Psychological, Physical, and Behavioral Outcomes
Quinn, DM, and Earnshaw, VA (2011.) Social Issues and Policy Review, 5, 1:160–190
The authors argue that stigma, discrimination, disclosure reactions and positive information, coupled with the importance of the identity determine how people with concealable stigmatized identities (e.g. mental illness, chronic disease) influence their psychological, physical, and behavioral health outcomes. Suggestions for policy implications are included. Read article here.
A qualitative study of families of a child with a nut allergy
Pitchforth, E., Weaver, S., Willars, J., Wawrzkowicz, E., Luyt, D., and Dixon-Woods, M. (2011.) Chronic Illness:7, 4 255-266.
This study explored the experiences of 26 families with a child with a nut allergy and found that children experienced teasing and exclusion, and parents were stigmatized as they were unable to “pass as normal.” Read abstract here.