Research - Caregivers

Perceived HIV stigma in AIDS caregiving dyads

Wight, RG., Aneshensel, CS., Murphy, DA., Miller-Martinez, D., and Beals, KP ( 2006). Social Science and Medicine: 62,2: 444-446.

This study examined the stigma experienced by dyads of adult sons and husbands with HIV and their caregiving mid-life mothers or wives. The stigma experienced by the person with HIV was greater than that of the caregiver, and the stigma perceived by the wife was greater than that of the mother. Resources addressing stigma should incorporate these factors. Read abstract here.


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Family Stigma and Caregiver Burden in Alzheimer’s Disease

Werner, P., Mittelman, MS., Goldstein, D., and Heinik, J.,(2011). The Gerontologist.  doi:10.1093/geront/gnr117

Caregivers of people with Alzheimer’s disease experience burden related to stigma, and this impacts the effectiveness of treatment to the person with the disease. The best way to address this stigma is to address stigma towards the Alzheimer’s disease. Read article here. 

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Psychiatric Illness and Family Stigma

Phelan, Jo C.; Bromet, Evelyn J.; and Link, Bruce G. (1998). Schizophrenia Bulletin 24 (1): 115-126.

Half of the family members studied reported concealing their relative’s hospitalization for mental illness to some degree, based on perceived stigma.  Read abstract here.

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Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families

Struening, E. L., Perlick, D. A., Link, B. G., et al (2001) . Psychiatric Services, 52, 1633– 1638.

Caring for someone with a serious mental illness can be distressing, and may be harmful to health and injurious to one’s quality of life. When those caregivers don’t feel support, or do feel judgment from their community, the negative effects are compounded. The authors suggest that developing interventions to yield more supportive and understanding communities would be worthwhile. Read abstract here.

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Perceived stigma and depression among caregivers of patients with bipolar disorder

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The experience of caregiving for severe mental illness: a comparison between anorexia nervosa and psychosis

Treasure, J., Murphy, T., Szmukler, T., Todd, G., Gavan, K., Joyce, J. (2001). Social Psychiatry and Psychiatric Epidemiology, 36, 7: 343-347.

Guilt and shame contributed to the burden on caregivers to people with anorexia nervosa and severe nervosa, with a higher burden on caregivers to people with the eating disorder. Read abstract here.



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